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Showing posts from July, 2017

Friday July 28th 2017

Again, bloods are fine. I asked him to check my neck, as I've been concerned about the swellings. I thought I was getting a double chin, but it's a swollen gland! He checked all my lymph areas and said they were fine, so I can book anything up to next appointment in four months. This will be around December 1st.  Generally I feel absolutely fine, but I do get tired easily and of course I worry about the slightest thing! I try to keep away from people who have obvious infections, but I still have to get things done, like shopping!  I have lots of committments outside the home and a number of hobbies and interests. I'm really having to think long and hard about what I must let go. I've been a school governor for over twenty years, so I think that some of my many roles there will have to go. I'm sixty one now, so ready to think about retirement completely in a year or two.  I rrecently read an article in the British Medical Journal about Turmeric+ helpin

The clinical trial

I've just returned from my trip to Austria and now I'm taking part in a clinical trial at the city hospital. It's run under the umbrella of Simon Rule's centre of excellence at Plymouth Hospital. He's one of the leading figures in the research into mantle cell lymphoma.  I decided that since I'm supposed to be so rare and that I'm not receiving any treatment yet, that I should do what I can to help with this research. So, I ended up at the city hospital, sitting in a lovely comfy chair, spitting into a glass and giving blood into lots of different phials! Apparently, most people take ages providing a sample of sputum. Not me! It must be because I'm always talking!!! I asked the lymphoma nurse in charge of the trial if she had any ideas about my allergic reactions, particularly to insect bites. She suggested I get my GP to contact a consultant she knows at the hospital who might be able to help.  As I was leaving the hospital, I felt for the first